Dermatomyositis...It is hard wearing all the stuff I need to in order to keep the sun off my skin and explaining...Reactions0reactionsComments6 replies
Dealing w more than one...How did I get both... Guess I'm just as rare☺️. I was denied Social Security for Ihh and lost the.appeal....Reactions0reactionsComments23 repliesAwarenessCopingDepression
Who has GI issues with CMT?...I have severe constipation and gastroparesis with CMT. Does anyone else suffer GI issues?...Reactions0reactionsComments2 repliesDiet & Nutrition
Workplace Experiences...What kind of experiences (positive or negative) have you had with disclosing to managers or coworkers?...Reactions0reactionsComments2 repliesWork & Employment
undiagnosed with normal blood work...These are my symptoms and I just wonder if anyone else has the same thing and has been diagnosed with something where...Reactions0reactionsComments8 repliesDiagnosis
Welcome! Let's Get to Know Each Other....We are glad you are here! Please introduce yourself and let us know which rare disease impacts your or your loved one's life....Reactions0reactionsComments69 replies
