seronegative gMG treatment beyond IVIG and/or Apheresis...IVIG was a fail for me (tried more than one product) and am currently receiving Apherisis every...reactions2repliesTreatment
Symptoms of Eye Vision Damage?...Eye vision damage can present with a variety of symptoms, depending on the underlying cause and severity....reactions4repliesSymptoms
Wisdom Teeth Removal...I am a nervous mum for the first time events!!...reactionsrepliesSurgeryTips & Advice
SILENT STRUGGLES: UNDERSTANDING EATING DISORDERS"...Acknowledging the signals or symptoms, searching for a master or skilled person's help and encouraging and promoting...reactions6repliesMental HealthTips & Advice
45 years diagnosed Scleroderma...Because outwardly I appear to be fine most people just f fr o not understand how...reactions5replies
Road to NMOSD...Finally took the initiative and called a neurologist that I worked with at another hospital, and after...reactions3replies
Unexplained Night sweats ...This has really been a problem for me and an exhausting experience!!!...reactions4repliesCopingAwareness
What is Retinitis Pigmentosa, and how does it affect vision over time?...Retinitis Pigmentosa (RP) is a rare, inherited eye disease that affects the retina, the light-sensitive tissue at the...reactionsrepliesSymptoms
FATTY LIVER CANCER...MY CANCER WAS MISSED ON MY XRAYS 1 1/2 YEARS AGO AND NOW...reactions3repliesHealthcare Team
Dystonia, epilepsy or something else?...Am now waiting on a more detailed MRI of lower brain and brain stem and reactions1reply
Dont know...My wife has igg4-- retroperitoneal fibrosis -- autoimmune disease. She has a lot of things wrong with...reactions2repliesCaregiving
Coping...I'm newly diagnosed and my steroids We're reduced to soon which caused a flare up. Been advised...reactions2repliesNewly DiagnosedCoping
Where do you find support?...Who supports you in a meaningful way? What does their support look like?...reactions27repliesCopingFriends & Family
Kidney Transplant/Primary Immune Deficiency...The balance of that disease with my autoimmune meds is a complicated balance. No one in...reactions4replies
Rare Blood Cancer: Waldemstroms Macglobanemia...Living with a rare blood cancer is challenging. On a BTK Inhibitor has to be...reactions2replies
Anyone experience this and how do we get help??...My son and I started having symptoms a year and a half ago, started after...reactions4repliesSymptoms
Rare Disease in Children...Were you diagnosed in childhood? How did having a rare disease shape you? If you are a...reactions2replies
Undiagnosed with neurological symptoms and multiple misdiagnoses...About a year ago, I started randomly slurring my speech for about 5 minutes at reactions5repliesSymptomsDiagnosis
Hope for Cushing’s Disease...I went into remission and ended up now with SAI. I take 10 mg reactions2repliesAwareness
Undiagnosed all season cold sensation of body...I'm 59 and I have a condition for over last 10 years that is now immensely...reactions8replies
