How can OCT and retinal photography reveal eye diseases before you even notice symptoms?...By combining these technologies, eye care professionals can create a high-resolution “map” of your eye health, helping...reactionsrepliesAwareness
Happy New Year ❤️...Id like discuss topics about rare combination Cardiac Amyloidos and Multiple Myeloma...reactions1replyDiagnosisDiet & Nutrition
Sponsored: Share Your Story and Help Raise Awareness for MMN...You’re unique, and so is the MMN community you’re a part of....
Beta Thalassemia ...), anemia, gallstones, and endocrine issues and hypothyroidism....reactions1reply
Common Variable immune deficiency ...I was ill from birth. Was not diagnosed until 45 years old. I have damage to...reactions1reply
At 77,my long life with Hypermobile Ehlers-Danlos Syndrome Is beyond painful; others can’t see it...reactionsreplies
Art to cope with your rare disease...Do you use art or creative outlets to cope with your rare disease? If so, please...reactions14repliesCoping
Myasthenia gravis...My 2 year boy baby suffering droopy eyelid and we have taken acytylcholinestrease receptor test and observed...reactions1reply
Lymphangioleiomyomatosis (LAM)...I am diagnosed with Lymphangioleiomyomatosis or LAM & asthma. Looking for others that have the same thing....reactions3repliesCoping
OPLL ossification of posterior longitudinal ligament...Ossification of the posterior longitudinal ligament....reactionsrepliesHealthcare Team
Adult Onset Still's Disease...I would like to find others that have been diagnosed with this. I would like to connect with...reactionsrepliesDiagnosis
What helps you avoid burnout or chronic illness fatigue?...Personal Strategies – What routines, habits, or lifestyle changes help you avoid burnout or fatigue? (e.g., sleep, nutrition, mindfulness)...reactions22repliesCopingMental Health
Burning ear syndrome...I began noticing 1 ear red and not the other rarely both ears, the red ear will...reactions17replies
I am diagnosed with both Neuromyelitis Optica and Myasthenia Gravis. I am searching for others with the......I want to know the statistics regarding how many people there are in the world diagnosed with both...reactions2repliesDiagnosisSide EffectsSymptoms
Nags and /or citrine deficiency...Looking for others who have NAGS and or Citrine Deficiency. I'm curious of how are others doing with...reactions2repliesCaregiving
Mast Cells trigger my self...anyone else have Mast cell and histamine problems? hot and cold intolerance?...reactions8repliesAwarenessSymptoms
Dealing w more than one...How did I get both... Guess I'm just as rare☺️. I was denied Social Security for Ihh...reactions31repliesAwarenessCopingDepression
