FATTY LIVER CANCER...MY CANCER WAS MISSED ON MY XRAYS 1 1/2 YEARS AGO AND NOW...reactions3repliesHealthcare Team
seronegative gMG treatment beyond IVIG and/or Apheresis...IVIG was a fail for me (tried more than one product) and am currently receiving Apherisis every...reactions2repliesTreatment
Undiagnosed with neurological symptoms and multiple misdiagnoses...About a year ago, I started randomly slurring my speech for about 5 minutes at reactions5repliesSymptomsDiagnosis
Rare Disease in Children...Were you diagnosed in childhood? How did having a rare disease shape you? If you are a...reactions2replies
Dont know...My wife has igg4-- retroperitoneal fibrosis -- autoimmune disease. She has a lot of things wrong with...reactions2repliesCaregiving
Coping...I'm newly diagnosed and my steroids We're reduced to soon which caused a flare up. Been advised...reactions2repliesNewly DiagnosedCoping
Wisdom Teeth Removal...I am a nervous mum for the first time events!!...reactionsrepliesSurgeryTips & Advice
Where do you find support?...Who supports you in a meaningful way? What does their support look like?...reactions37repliesCopingFriends & Family
45 years diagnosed Scleroderma...Because outwardly I appear to be fine most people just f fr o not understand how...reactions5replies
Bones in head constantly keep feeling like they swelling....A bone appears and dissapears at back of head and the left side also has swelling...reactions2replies
My disease...so I reluctantly agreed..while the biopsy was supposed to be no more than a reactions2replies
my life with Polymyositis...I needed a cushion or two to rise from a chair, needed bars and a...reactions7repliesDiagnosis
Hope for Cushing’s Disease...I went into remission and ended up now with SAI. I take 10 mg reactions2repliesAwareness
Dietary Changes...Today is the first day since my diagnosis a month ago that I have just felt...reactions11repliesCopingDiet & NutritionNewly Diagnosed
Leg movement...No one has a clue what's going on. Any help is greatly appreciated....reactions8repliesDiagnosisTips & AdviceTreatment
what are some tips for managing rar disease?...Follow the Treatment Plan: Management of a rare disease often requires following a specialized treatment plan....reactionsrepliesDiagnosis
Unknown Health conditions that is so discormforting...Hi, everyone I woke up one morning to notice that I have a burning sensation reactions8repliesDepressionSymptomsTreatment
Can glaucoma develop even if your eye pressure is normal?...The exact cause isn’t fully understood, but factors like reduced blood flow to the optic nerve or increased sensitivity reactionsrepliesCaregiving
Looking for fellow giants...Hoping to get a better understanding of Acromegaly and find others with the condition.....reactions2repliesAwarenessCopingDiagnosis
Possible Cervical Myelopathy...7 months ago I suffered an acute injury causing a herniation at L5-S1 giving...reactions1replyDiagnosisSurgeryTreatment
