Unexplained 2 week fever multiple times...Been told maybe see a Florida doctor as they may know if its caused by something there....reactions1replyDiagnosis
Hypogammaglobulinemia...This disease has caused me to be allergic to many medications and some can kill...reactions1replyWork & EmploymentHealthcare TeamResearch & Clinical Trials
Do you consider yourself to have an invisible illness?...What aspects of your rare disease are invisible to others? Share in the comments below....reactions17repliesAwarenessSymptoms
Happy New Year ❤️...Id like discuss topics about rare combination Cardiac Amyloidos and Multiple Myeloma...reactions1replyDiagnosisDiet & Nutrition
Beta Thalassemia ...), anemia, gallstones, and endocrine issues and hypothyroidism....reactions1reply
Common Variable immune deficiency ...I was ill from birth. Was not diagnosed until 45 years old. I have damage to...reactions1reply
At 77,my long life with Hypermobile Ehlers-Danlos Syndrome Is beyond painful; others can’t see it...reactionsreplies
Art to cope with your rare disease...Do you use art or creative outlets to cope with your rare disease? If so, please...reactions14repliesCoping
Myasthenia gravis...My 2 year boy baby suffering droopy eyelid and we have taken acytylcholinestrease receptor test and observed...reactions1reply
Lymphangioleiomyomatosis (LAM)...I am diagnosed with Lymphangioleiomyomatosis or LAM & asthma. Looking for others that have the same thing....reactions3repliesCoping
OPLL ossification of posterior longitudinal ligament...Ossification of the posterior longitudinal ligament....reactionsrepliesHealthcare Team
Adult Onset Still's Disease...I would like to find others that have been diagnosed with this. I would like to connect with...reactionsrepliesDiagnosis
Burning ear syndrome...I began noticing 1 ear red and not the other rarely both ears, the red ear will...reactions17replies
Mast Cells trigger my self...anyone else have Mast cell and histamine problems? hot and cold intolerance?...reactions8repliesAwarenessSymptoms
Dealing w more than one...How did I get both... Guess I'm just as rare☺️. I was denied Social Security for Ihh...reactions31repliesAwarenessCopingDepression
How far do you travel for medical care?...In your diagnosis or treatment journey, how far do you have to go to see...reactions5replies
