Living with Mast Cell Activation...62 years young and finally finding myself... Who would I have been if I was not...reactions3replies
What is the most annoying unsolicited advice you've heard?...What annoying or unhelpful suggestions are you most tired of receiving (unsolicited!) from other people?...reactions31repliesCoping
Multiple chemical sensitivity...I am bothered by smells noises cold and smoke...reactions2repliesCoping
Red rash in my mounth...I have red "rash" or something in her mounth for more then 2 months. What do you...reactions2replies
Who has GI issues with CMT?...I have severe constipation and gastroparesis with CMT. Does anyone else suffer GI issues?...reactions2repliesDiet & Nutrition
Rare Diagnosis Experiences...How long did it take you to get diagnosed with your rare disease? Did you receive any misdiagnoses?...reactions98repliesNewly DiagnosedSymptomsDiagnosis
Recognizing the Symptoms of Eye Conditions...If you experience any unusual changes in your vision or eye discomfort, seeking prompt evaluation by reactions3repliesSymptoms
Dermatomyositis...It is hard wearing all the stuff I need to in order to keep the...reactions6replies
Grad School ...Any tips for managing grad school with rare disease? I suffer from neuromuscular disease and it affects basically...reactions5replies
Numbness in fingertips, sensations in feet and head all depends on what I eat....Started with numbness in finger tips, then to my feet feeling weird in the morning when I...reactions3repliesDiagnosis
Does anyone have olgilvie syndrome?...Does anyone have olgilvie syndrome and what did Dr say prognosis was? This is very rare from...reactions2replies
Learning to cope w/all my medical issues...I'm new on here, hoping to have some people to chat with. I have 4pups that keep reactions26repliesCoping
Guys, I'm so rare, it seems I'm the only one here with autoimmune cholangitis...Please tell me I'm not the only one with this diagnosis, here...reactions2replies
undiagnosed with normal blood work...These are my symptoms and I just wonder if anyone else has the same thing reactions9repliesDiagnosis
Welcome! Let's Get to Know Each Other....We are glad you are here! Please introduce yourself and let us know which rare disease impacts...reactions70replies
Coping with books...I fill up my cup by reading. I love science fiction specifically, because it tells reactions5replies
Colonoscopy to rule out Mast Cell Activation Syndrome......What exactly are they trying to find out from the results of Colonoscopy?...reactions4repliesNewly DiagnosedDiagnosisSurgery
Active todayInvisible Illness...What aspects of your rare disease are invisible to others?...reactions111repliesCoping
