Does anyone have olgilvie syndrome?...Does anyone have olgilvie syndrome and what did Dr say prognosis was? This is very rare from...reactions2replies
Learning to cope w/all my medical issues...I'm new on here, hoping to have some people to chat with. I have 4pups that keep reactions26repliesCoping
Experimental treatments...even though NIH has proven it to work on certain conditions....reactions4replies
Guys, I'm so rare, it seems I'm the only one here with autoimmune cholangitis...Please tell me I'm not the only one with this diagnosis, here...reactions2replies
undiagnosed with normal blood work...These are my symptoms and I just wonder if anyone else has the same thing reactions9repliesDiagnosis
Welcome! Let's Get to Know Each Other....We are glad you are here! Please introduce yourself and let us know which rare disease impacts...reactions70replies
Coping with books...I fill up my cup by reading. I love science fiction specifically, because it tells reactions5replies
Invisible Illness...What aspects of your rare disease are invisible to others?...reactions115repliesCoping
Colonoscopy to rule out Mast Cell Activation Syndrome......What exactly are they trying to find out from the results of Colonoscopy?...reactions4repliesNewly DiagnosedDiagnosisSurgery
Have you ever seen your rare disease represented in the media?...How did it make you feel? Did you feel it was an accurate depiction?...reactions6repliesAwareness
Nags and /or citrine deficiency...Looking for others who have NAGS and or Citrine Deficiency. I'm curious of how are others doing with...reactions2repliesCaregiving
