Colonoscopy to rule out Mast Cell Activation Syndrome......What exactly are they trying to find out from the results of Colonoscopy?...reactions4repliesNewly DiagnosedDiagnosisSurgery
Have you ever seen your rare disease represented in the media?...How did it make you feel? Did you feel it was an accurate depiction?...reactions19repliesAwareness
Nags and /or citrine deficiency...Looking for others who have NAGS and or Citrine Deficiency. I'm curious of how are others doing with...reactions2repliesCaregiving