Colonoscopy to rule out Mast Cell Activation Syndrome......What exactly are they trying to find out from the results of Colonoscopy?...reactions4repliesNewly DiagnosedDiagnosisSurgery
Extremely rare and ambiguous medical case....Time and energy are a luxury that unfortunately i can’t afford anymore matter of fact i am...reactions3repliesDiagnosis
Have you ever seen your rare disease represented in the media?...How did it make you feel? Did you feel it was an accurate depiction?...reactions6repliesAwareness
Nags and /or citrine deficiency...Looking for others who have NAGS and or Citrine Deficiency. I'm curious of how are others doing with having these...reactions2repliesCaregiving
Biggest challenges you face in your current journey?...Where do people go to get support? What actually makes a difference?...reactions82repliesCaregivingCopingTips & Advice
Sponsored: Share Your Story and Help Raise Awareness for MMN...©2024 argenx US-NON-24-00346 V1 11/2024...
