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About Us

At RareDisease.net we empower patients and caregivers to take control of rare diseases by providing a platform to learn, educate, and connect with peers and healthcare professionals.

RareDisease.net can have an enormous impact on the lives of patients and their loved ones. Whether you have just started experiencing the early signs and symptoms of a rare disease or have been living with a rare disease for years, RareDisease.net strives to provide you with tools and resources to help manage your disease. Although there is no cure for rare diseases, we hope the information provided by patients, caregivers, and healthcare professionals at RareDisease.net will help improve your quality of life.

NOTE: Only you and your doctor can decide which treatments are right for you. Do not stop taking or change a treatment or prescription medicine, or the way you use them, without first consulting your doctor.

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At RareDisease.net, we strive to provide you with the most accurate and relevant information. We use only trustworthy sources, such as the Food and Drug Administration (FDA), and peer-reviewed journals among others. We follow the principles of the Health On the Net Foundation to provide transparent and reliable health information.

RareDisease.net also features articles contributed by Physicians, Patient Advocates or other Healthcare Experts. We may also have “Guest Experts” who contribute articles on specific topics featured in the RareDisease.net Newsfeed. The author of each of these articles is clearly marked along with a link to the author’s profile. RareDisease.net does not edit these articles, as they represent the thoughts, opinions, and judgment of their authors.

We encourage individuals impacted by a rare disease to share their own experiences with the community. We welcome your questions, comments and suggestions! Please e-mail us at contact@RareDisease.net and we will respond as soon as possible.

Please note that our team hours are Monday-Friday 8:30AM - 5:30PM EST. While we may respond during the evenings and weekends, we cannot guarantee a response outside of our standard team hours.

RareDisease.net accepts responsible advertising and sponsorships, however sponsors do not influence editorial content in any way. Advertisements and any sponsor-provided content will be clearly and unambiguously marked and thus easily distinguishable from RareDisease.net editorial content. Revenue generated from these sponsorships helps us continue developing and improving the site to meet your needs with the most current information and tools available.

RareDisease.net is brought to you by Health Union, LLC, which does not manufacture, distribute, market or sell any product to cure, diagnose or prevent rare diseases or any health condition. Health Union, LLC is an independent company solely funded by its founders and is not owned in whole or in part by any other entity.

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