What to Expect: Your Guide to MAC Lung Disease TreatmentBeing diagnosed with MAC lung disease is overwhelming for many people. The good news is that most infections with Mycobacterium avium complex...
Navigating the Chronic Illness Conversation: 4 Tips for Talking With Loved OnesIt can be so hard for people outside of the rare disease community to truly understand what we go through—ongoing symptoms, fatigue,...reactionscomments
Where's Your Line? Navigating Repeated IV Attempts with a Rare DiseaseMy experience with a rare disease, which was the same for my mother too, is that our health is complicated, and so...reactions2comments
Featured forum What is your go-to item or ritual for finding physical comfort during a flare-up or a hard health day?Whether it’s a specific pillow, a favorite tea, a warm bath, or a cozy blanket, we want to know what brings you...reactions89replies
Featured story It's Just the Way You AreI just turned 60. I have been questioning many things, regarding my health, for as long as I can remember. I went...reactions3comments
