The Power of Predictability: How Routine Helps Manage My Rare DiseasesThrough trial and error over the years, I've learned that my body functions best on a routine schedule, regardless of what I...
What to Expect: Your Guide to MAC Lung Disease TreatmentBeing diagnosed with MAC lung disease is overwhelming for many people. The good news is that most infections with Mycobacterium avium complex...reactionscomments
One Essential Strategy Every Rare Disease Caregiver NeedsI’ve shared before about taking on a new role: not only am I a rare disease patient, but I am now also...reactionscomments
Featured forum What is your go-to item or ritual for finding physical comfort during a flare-up or a hard health day?Whether it’s a specific pillow, a favorite tea, a warm bath, or a cozy blanket, we want to know what brings you...reactions94replies
Featured story It's Just the Way You AreI just turned 60. I have been questioning many things, regarding my health, for as long as I can remember. I went...reactions3comments
