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When There’s a Shortage of the Medicine That Keeps You Alive

I need 2 medications to survive. I don't mean it in the sense that my health would deteriorate faster. And I don't mean it in the sense that my life...

By Annie-Danielle Grenier

4 min read

Try Walking in My Brace

Life with a bleeding disorder makes getting around a whole lot harder as I age. I have moderate hemophilia and consider myself lucky that I only have one recurring problem...

By Shawn Decker

3 min read

Managing Stress and Chronic Illness

Stress is one of those factors that can really impact our overall health. Stress can affect the body in many ways, with symptoms affecting your body, mood, and behavior.1 If...

By Tatiana Corbitt

2 min read

When There’s a Shortage of the Medicine That Keeps You Alive

I need 2 medications to survive. I don't mean it in the sense that my health would deteriorate faster. And I don't mean it in the sense that my life...

By Annie-Danielle Grenier

4 min read

Try Walking in My Brace

Life with a bleeding disorder makes getting around a whole lot harder as I age. I have moderate hemophilia and consider myself lucky that I only have one recurring problem...

By Shawn Decker

3 min read

Managing Stress and Chronic Illness

Stress is one of those factors that can really impact our overall health. Stress can affect the body in many ways, with symptoms affecting your body, mood, and behavior.1 If...

By Tatiana Corbitt

2 min read

When There’s a Shortage of the Medicine That Keeps You Alive

I need 2 medications to survive. I don't mean it in the sense that my health would deteriorate faster. And I don't mean it in the sense that my life...

By Annie-Danielle Grenier

4 min read

Try Walking in My Brace

Life with a bleeding disorder makes getting around a whole lot harder as I age. I have moderate hemophilia and consider myself lucky that I only have one recurring problem...

By Shawn Decker

3 min read

Managing Stress and Chronic Illness

Stress is one of those factors that can really impact our overall health. Stress can affect the body in many ways, with symptoms affecting your body, mood, and behavior.1 If...

By Tatiana Corbitt

2 min read

Rare Diseases and Preparing for an Emergency

Medical emergencies are certainly no fun, especially when a rare disease is thrown into the mix. However, being prepared for a potential emergency can make a nightmare of a situation...

By Jessica Hanson

3 min read

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Community Views: The Hardest Symptoms to Manage

There are many challenges to living with a rare disease. The challenges may be physical, mental, and emotional. Having a rare disease means many people will not understand your health...