How I Start Difficult Conversations About My Rare DiseaseWhen living with a rare disease, setting boundaries around physical limitations is important. As a person with narcolepsy, I've had to learn...
Finding a Specialist After a Rare Disease DiagnosisWhen you are diagnosed with a rare disease, you will likely have many questions and concerns. Finding a specialist who can guide...reactionscomments
Diet and Exercise Tips for Your AOSD Treatment PlanAdult-onset Still’s disease (AOSD) is a rare type of arthritis that causes joint pain, swelling, and systemic inflammation. Healthcare providers typically treat...reactionscomments
Featured forum What is your go-to item or ritual for finding physical comfort during a flare-up or a hard health day?Whether it’s a specific pillow, a favorite tea, a warm bath, or a cozy blanket, we want to know what brings you...reactions94replies
Featured story It's Just the Way You AreI just turned 60. I have been questioning many things, regarding my health, for as long as I can remember. I went...reactions3comments
