FeaturedActive yesterdayWelcome! Let's Get to Know Each Other.We are glad you are here! Please introduce yourself and let us know which rare disease impacts your or your loved one's life...Reactions 0 reactions Comments6 replies
Who has GI issues with CMT?I have severe constipation and gastroparesis with CMT. Does anyone else suffer GI issues...Reactions 0 reactions Comments0 repliesDiet & Nutrition
Dealing w more than oneHi, I'm happy to have run across this email, community forum. I currently suffer with HS & also Hydrocephalus. These are two rare diseases. How did I get both... Guess...Reactions 0 reactions Comments0 repliesAwarenessCopingDepression
I wish others knew that...What is one thing you wish more people knew about living with a rare disease...Reactions 0 reactions Comments0 repliesCoping
