APLAID
I’m a patient of the NIH. I don’t believe there is anyone else out there with this disease besides my daughter and myself. Has anyone body be diagnosed with APLAID or any form of it?
, wow, I am an avid researcher, and the only information I could find was the information available at the NIH, there was not even any information on APLAID at NORD.
Are they able to provide any treatment for you both? --Warmly, Donna (Team Member)
Hi
Thank you for posting about the very rare diagnosis of APLAID that you share with your daughter. For others who might also wish to read about this diagnosis, I am attaching a link: https://www.ncbi.nlm.nih.gov/medgen/766875 I hope that someone else here might know of others who are affected. Good luck in your search. Hugs, Gina Miller, Team Member
