Active 3 days agoUndiagnosed insane symptoms1st time here. I desperately need help as to why I go numb and loss bodily function and become extremely dizzy if I don't have constant heat on me when...Reactions0reactionsComments16 repliesDiagnosis
Active 5 days agoLife with Rare Coexistence of Systemic Lupus and Ankylosis SpondylitisHello, I just curious to find the other 8 - 10 individuals living with the Rare Coexistence of Systemic Lupus and Ankylosis Spondylitis (Axial for me ). Tbh, living with...Reactions0reactionsComments0 repliesTips & AdviceCopingDiagnosis
Undiagnosed still but something is wrong Hi, I know there’s something going on, but doctors dismiss me, don’t listen, or tell me they don’t know what’s wrong but admit there’s something but tell me they can’t...Reactions0reactionsComments4 repliesCopingDepressionDiagnosis
Feeling pure psychological discomfort after being on medicationHi everyone! I am currently on Effexor, Seroquel and Risperidal. I have been on Effexor since Janauary 2024, Risperidal since March 2024, and Seroquel since November 2024. I have been...Reactions0reactionsComments0 repliesDiagnosis
Leg movement2 years ago I started to develop a disorder in both my legs. Can't move properly. I'm 55 Can't run at all, trip up stairs n more things than I...Reactions0reactionsComments7 repliesTips & AdviceTreatmentDiagnosis
Rare Diagnosis ExperiencesHow long did it take you to get diagnosed with your rare disease? Did you receive any misdiagnoses?...Reactions0reactionsComments98 repliesNewly DiagnosedSymptomsDiagnosis
my life with PolymyositisAbout 7 years ago (I was 77 then) I began noticing body weakness, first, gentle, then more acute. I needed a cushion or two to rise from a chair, needed...Reactions0reactionsComments7 repliesDiagnosis
Unknown Illness - Side pain & Snycope For the past few years I have seen multiple specialists and had many tests. Physical - Female, white, 32yo, 200 lbs. Historical symptoms: Ongoing: Low blood pressure, bradycardia (normal resting...Reactions0reactionsComments5 repliesDiagnosis
Urgent Help Needed: Undiagnosed Condition in 8-Month-Old with Severe SymptomsHello everyone! I'm posting on behalf of a friend in China whose 8-month-old son has been battling severe, unexplained symptoms since he was just 2 months old. These symptoms include...Reactions0reactionsComments1 repliesDiagnosisSymptomsTips & Advice
Undiagnosed with neurological symptoms and multiple misdiagnosesHi folks! I'm currently seeing a neurologist, who is giving me multiple tests to see what rare disease I may have. About a year ago, I started randomly slurring my...Reactions0reactionsComments4 repliesSymptomsDiagnosis