Anyone experience this and how do we get help??My son and I started having symptoms a year and a half ago, started after a camping trip and we had a lump on different parts of the body ...reactions4repliesSymptoms
Please help my wife, she has a disease that is difficult to diagnoseSymptoms include crooked tongue, difficulty swallowing, bloody sputum, and headaches from the back of the head to the top of the head and eye sockets. The pain lasts for about...reactions1replyTreatmentSymptoms
Mast Cells trigger my self anyone else have Mast cell and histamine problems? hot and cold intolerance?...reactions8repliesSymptomsAwareness
Rare Diagnosis ExperiencesHow long did it take you to get diagnosed with your rare disease? Did you receive any misdiagnoses?...reactions98repliesSymptomsNewly DiagnosedDiagnosis
Goosebumps with most emotions/passion, sneezing, yawning..Since march of this year, every time I cried, goosebumps all over my left side of my body. Over the last few months it’s escalated, to goosebumps all over my...reactions8repliesSymptoms
Urgent Help Needed: Undiagnosed Condition in 8-Month-Old with Severe SymptomsHello everyone! I'm posting on behalf of a friend in China whose 8-month-old son has been battling severe, unexplained symptoms since he was just 2 months old. These symptoms include...reactions1replyTips & AdviceSymptomsDiagnosis
Undiagnosed with neurological symptoms and multiple misdiagnosesHi folks! I'm currently seeing a neurologist, who is giving me multiple tests to see what rare disease I may have. About a year ago, I started randomly slurring my...reactions4repliesDiagnosisSymptoms
Doctors can not figure out wife's medical issueAfter over a year of testing they still can not figure out what is wrong. My wife had had roughly 8 cat scans, erg, colonoscopy, gastric emptying, mri, biopsys and...reactions3repliesSymptomsDiagnosisTreatment
METHEMOGLOBINEMIA: AN UNCOMMON HEMOGLOBIN DISORDER"METHEMOGLOBINEMIA DEFINITION Methemoglobinemia is a blood disorder where an unusual quantity of methemoglobin is generated. Methemoglobin is a formation of hemoglobin in which the iron in the heme group is...reactions23repliesDiagnosisSymptomsAwareness
1 year later, no diagnosisMom looking for support...It's been a little over a year since all this started. 2 hospital stays each 1 week long. First both hospitals showed results positive for scleroderma, (and...reactions1replyDiagnosisTips & AdviceSymptoms