Mast Cells trigger my self

, oh, man. I know dealing with more than one health issue makes things more complicated. Do you feel like your conditions are being well managed (I know that's easier said than done when it comes to MCAS and rare diseases)?

Best, Erin, Team Member.

Here's another patient with your hot/cold intolerance symptom.

Gina Miller, Team Member

Hi 😀
Thanks for commenting.
I see the original poster inquired about hot/cold intolerance.
Is this something you also experience?

Hope you're having a nice day~

Gina Miller
RareDisease.net Team Member

I’ve had hot/cold intolerance since my 20s and was diagnosed with Raynauds, over 40 years ago. I don’t have mastcell but I have myasthenia gravis, and know someone that has myasthenia gravis, mastcell and bad histamine issues. I was also diagnosed with parkinsons by 2 doctors but now 3 new doctors say I don’t have it, but have bad essential tremors instead along with gait issues. I also have had severe headaches and GI problems my whole life due to spina bifida, neuropathy and 7 different kinds of headaches for the last 10 years. Now I have urinary issues which are being evaluated due to either spina bifida, kidney disease or the big C. I’m glad I don’t focus on my health or have any of my doctors on speed dial, but I do ask them periodically how their kid’s are doing in college or their new sports car