Mast Cells trigger my self

Here's another patient with your hot/cold intolerance symptom.

Gina Miller, Team Member

Hi 😀
Thanks for commenting.
I see the original poster inquired about hot/cold intolerance.
Is this something you also experience?

Hope you're having a nice day~

Gina Miller
RareDisease.net Team Member

I’ve had hot/cold intolerance since my 20s and was diagnosed with Raynauds, over 40 years ago. I don’t have mastcell but I have myasthenia gravis, and know someone that has myasthenia gravis, mastcell and bad histamine issues. I was also diagnosed with parkinsons by 2 doctors but now 3 new doctors say I don’t have it, but have bad essential tremors instead along with gait issues. I also have had severe headaches and GI problems my whole life due to spina bifida, neuropathy and 7 different kinds of headaches for the last 10 years. Now I have urinary issues which are being evaluated due to either spina bifida, kidney disease or the big C. I’m glad I don’t focus on my health or have any of my doctors on speed dial, but I do ask them periodically how their kid’s are doing in college or their new sports car