cerebellar ataxia

Hi, !

I know it's been awhile since you posted this, but I was just checking in to see how you are doing. I hope you are managing your ataxia symptoms pretty well and I hope things are going well for you, overall.

Best, Erin, Team Member.

Gosh I am sorry you are dealing with these kinds of symptoms. Cerebellar ataxia sounds like it must be frustrating to live with, not being able to control your voluntary movements very well. What are some of the hardest parts of living with these symptoms? Do you have any mobility devices to assist you in getting around, or people in your life that help support you when your symptoms are at their worst? While I don't suffer from cerebellar ataxia, I do have narcolepsy with cataplexy where we lose control of our muscles suddenly when we experience strong emotions. It can be really scary, these episodes. So I feel for you, although I cannot fully understand what you go through living with cerebellar ataxia. We are here for you though! As much as we can be! Warmest regards, Tatiana (raredisease.net Team Member)