Forums

Read conversations, start a discussion, and connect with others about rare diseases.

Active today

Where do you find support?

Who supports you in a meaningful way? What does their support look like? As you have moved along your rare disease journey...

Active today

Has anyone found effective joint pain therapy that actually works long-term?

Hi everyone, I’ve been dealing with joint pain for quite a while now, mostly in my knees and occasionally in my shoulders...

Active 5 days ago

High red cells and tired constantly.

I have morphea and a spinal malformation, constantly sore points underneath each morphea patch, muscle spasms, tiredness and watery vision. I have...

Active 7 days ago

Invisible Illness

What aspects of your rare disease are invisible to others?...

Active 7 days ago

Do you consider yourself to have an invisible illness?

What aspects of your rare disease are invisible to others? Share in the comments below....

How to find a doctor that cares and is willing to dig deeper

Hi RD friends! My daughter has some type of sero-negative auto-immune condition, and has had it since she was 12 (she's 32...

Help Cure compass

I have a daughter with nf1 and didnt get info or updates on treatments so i developed a web site to get...

cerebellar ataxia

Dealing with the many symptoms of ataxia. Has anyone else dealt with this?...

That I can control my symptoms if I make an effort

why do things aways have to be YOUR way?

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