Living With Adult-onset Still's Disease?
Has anyone been diagnosed with adult-onset Still's disease? What was your diagnosis experience like? How do you manage life with AOSD?
Hi,
and ! I know it's been quite some time since you posted your question, Kelly, but I wanted to share a story about being diagnosed with AOSD from our sister site dedicated to Rheumatoid Arthritis -- https://rheumatoidarthritis.net/stories/finally-a-name-to-go-with-what. As you both probably well know, AOSD is quite rare and finding knowledgeable doctors to help you manage your symptoms can be challenging.
I do hope you both are able to find treatments that bring you some relief from your symptoms!
Best, Erin, Team Member.Ik heb de diagnose pas 1 jaar. Ben nu aan het kijken wat flares geeft qua voeding en drinken.
Alcohol is een no go merk ik. Net als fast food., we can only moderate in English at this time. I believe you're saying that you've been working on identifying triggers. That's always a good idea! Have you found that the frequency or intensity of your flares has decreased while avoiding your triggers? - Warmly, Donna (Team Member)
