The Confident Patient: A Doctor Discussion Guide for Primary Immunodeficiency TreatmentTalking to your doctor just got easier – this guide shows you where to start.3 min read
Living Actively With PI: Tips for Daily Infection PreventionA primary immunodeficiency (PI) diagnosis can bring up a mix of emotions. You may feel relief at having a name for what...4 min read
Coordinating Care With a Rare DiseaseMany general medical practitioners are not educated about rare diseases. This can make it difficult for people with rare diseases to get...2 min read
The Diagnosis Journey: Primary Immunodeficiency (PI)A long and difficult road may face people with primary immunodeficiency, also known as PI. It is not always easy to diagnose...5 min read
The Mindset Shift of Proactive CareI was born with a rare, chronic condition that shaped my youth in very dramatic ways. As an infant, my pain threshold...4 min read
I Have to Work Even When I'm Tired: The Reality of CaregivingI'm convinced that one of the universal realities of parenting is having to keep going, even when you're completely exhausted. Add a...3 min read
Taking Control of Your PI Treatment at HomeLiving with primary immunodeficiency (PI) can feel like a life managed by the schedule of your infusions. For years, intravenous immunoglobulin (IVIG)...3 min read
Could Recurrent Infections Be a Sign of Primary Immunodeficiency?Another sinus infection. Another round of antibiotics. Another sick day. You may have been told it is bad luck, weak lungs, or...3 min read
