Community Hub

Check out the latest updates from our community of members living with a rare disease.

Latest Updates

  1. Status

    How are you feeling?

  2. Zebralicious1990's avatar image
    Zebralicious1990
    Replied to status Discouraged
    Reply to status
  3. Jessica Hanson's avatar image
    Jessica Hanson
    Comment
  4. Pineyroo's avatar image
    Pineyroo
    Comment
  5. CommunityMember50da83's avatar image
    CommunityMember50da83
    Replied to the forum topic Rare Diagnosis Experiences
    Reply
  6. CommunityMember47e317's avatar image
    CommunityMember47e317
    Replied to the forum topic Rare Diagnosis Experiences
    Reply
  7. Gina Miller's avatar image
    Gina Miller
    Replied to the forum topic Rare Diagnosis Experiences
    Reply

Become a member to find support, connections, and answers about living with a rare disease.

Meet the Team

Get to know our team of authors and moderators

  • Jessica Hanson's avatar image

    Patient Leader

  • Tatiana Corbitt's avatar image

    Patient Leader

  • Dwayne Wilson's avatar image

    Patient Leader

  • Elle Cole's avatar image

    Patient Leader

See the full team caret icon

Please keep our community rules in mind when posting. Questions or concerns? Email us at contact@raredisease.net.