Community Hub

Check out the latest updates from our community of members living with a rare disease.

Become a member to find support, connections, and answers about living with a rare disease.

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Meet the Team

Get to know our team of authors and moderators

  • Jessica Hanson

    Advocate

  • Tatiana Corbitt

    Advocate

  • Frank Rivera

    Advocate

  • Jenny Jones

    Advocate

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Please keep our community rules in mind when posting. Questions or concerns? Email us at contact@raredisease.net.