Does any have a rarer type of EDS?I was just diagnosed with EDS and Dysautonomia. I'm still unsure which types, though and I'd like to know people's experiences....reactions1replyNewly Diagnosed
Getting doctors to understand I spent 10 years of my life in excruciating pain. The last two years of my life I considered not being here...reactions2replies
My Rare Disease: Primary Immunodeficiency CVIDHi. My name is Sandy. Here's my story. All my life I struggled with multiple infections, viruses and sickness. I can remember...reactions2comments