Invisible IllnessWhat aspects of your rare disease are invisible to others? ...reactions105repliesCoping
What is your go-to item or ritual for finding physical comfort during a flare-up or a hard health day?Whether it’s a specific pillow, a favorite tea, a warm bath, or a cozy blanket, we want to know what brings you...reactions31replies
How to find a doctor that cares and is willing to dig deeperHi RD friends! My daughter has some type of sero-negative auto-immune condition, and has had it since she was 12 (she's 32...reactionsrepliesDiagnosisHealthcare TeamResearch & Clinical Trials
A Rare CHANCE LifeMy story is about my son Chancely, who is a very strong & vibrant young boy! I started noticing he was sick...reactions3comments