Do you consider yourself to have an invisible illness?What aspects of your rare disease are invisible to others? Share in the comments below....reactions8repliesAwarenessSymptoms
Invisible IllnessWhat aspects of your rare disease are invisible to others? ...reactions118repliesCoping
Where do you find support?Who supports you in a meaningful way? What does their support look like? As you have moved along your rare disease journey...reactions35repliesCopingFriends & Family
When Stubbornness Pays OffI knew from childhood that there was something different in my health from other kids. It seems as if I was born...reactions3comments