The Weight of Rare DiseaseThis giveaway has closed but we still welcome community members to share their perspectives. Living with a rare disease comes with challenges that many people may not fully understand. Beyond...reactions108repliesAwarenessCopingTips & Advice
New here today, and looking for folks dealing with MDS.Been on different prostate cancer sites with interesting info, but can't find much on myelodysplastic syndromes (MDS) anywhere. Know there is only 10-14K cases a year. Doesn't seem like there...reactions6replies
Undiagnosed all season cold sensation of bodyI'm 59 and I have a condition for over last 10 years that is now immensely impacting quality of my life. I feel cold getting absorbed throughout my body except...reactions7replies
Andersen-Tawil Syndrome Diagnosis: Full CircleIn 2009, my baby brother collapsed while running in a track meet. He was 16, and I already worked as a pediatric sub-acute home health nurse. The diagnosis? A sudden...reactions2comments