A Nauseating combo of disorders from birth only to worsen 14 years laterSo Being born with the combination of ADHD, Autism and Tourette syndrome was bad enough only to have injury after injury then a tonsil removal surgery at 5 years old...reactions7replies
I wish others knew that...What is one thing you wish more people knew about living with a rare disease?...reactions73repliesCoping
Where do you find support?Who supports you in a meaningful way? What does their support look like? As you have moved along your rare disease journey, has the type of support you need changed...reactions14repliesCopingFriends & Family
Phrenic Nerve PalsyTwo and a half years ago I had acute neck and shoulder pain. This lead to severe dyspnea treated as asthma, but then progressed from one to both hemidiaphragms not...reactions1comment