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Check out the latest updates from our community of members living with a rare disease.

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How are you feeling?
Jamie
Replied to the forum topic Biggest challenges you face in your current journey?
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Elle Cole
Commented on the post Finding Your Advocacy Voice: Embracing a Safe Community
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DonnaFA
Replied to the forum topic Aunauthorized people try to get your medical information
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DonnaFA
Replied to status Spent the day being very productive, learning, and coming up with ways to spread awareness while honoring my late brother, and bringing hope to my newly diagnosed Child.
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DonnaFA
Replied to the forum topic Biggest challenges you face in your current journey?
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Jamie
Commented on the post Finding Your Advocacy Voice: Embracing a Safe Community
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