Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Community Hub

Check out the latest updates from our community of members living with a rare disease.

Trending Topics

Forums

Stories

Latest Updates

  1. Status

    How are you feeling?

  2. Pamela's avatar image
    Pamela
    Replied to the forum topic Where do you find support?
    Reply
  3. Pamela's avatar image
    Pamela
    Replied to the forum topic The Weight of Rare Disease
    Reply
  4. DonnaFA's avatar image
    DonnaFA
    Replied to status Some from my other support groups will know that my mom passed away January 22, 2025 of complications from a rare blood cancer. Today is a rough day. Mom always...
    Reply to status
  5. Lynjbennett65's avatar image
    Lynjbennett65
    Replied to status Some from my other support groups will know that my mom passed away January 22, 2025 of complications from a rare blood cancer. Today is a rough day. Mom always...
    Reply to status
  6. DonnaFA's avatar image
    DonnaFA
    Replied to the forum topic The Weight of Rare Disease
    Reply
  7. DonnaFA's avatar image
    DonnaFA
    Replied to status Some from my other support groups will know that my mom passed away January 22, 2025 of complications from a rare blood cancer. Today is a rough day. Mom always...
    Reply to status

Become a member to find support, connections, and answers about living with a rare disease.

Meet the Team

Get to know our team of authors and moderators

    See the full team caret icon

    Please keep our community rules in mind when posting. Questions or concerns? Email us at contact@raredisease.net.