Unexplained 2 week fever multiple timesStarted in 2022 and just finishing the 5th time. I live in upstate NY 6 months and west central Florida the other...reactionsrepliesDiagnosis
I wish others knew that...What is one thing you wish more people knew about living with a rare disease?...reactions157repliesCoping
Invisible IllnessWhat aspects of your rare disease are invisible to others? ...reactions99repliesCoping
My Journey with Alport SyndromeWell, I doubt anyone will read this or even care, but I’m writing it anyway. I’m a single, straight 31‑year-old woman, currently...reactions1comment