I wish others knew that...What is one thing you wish more people knew about living with a rare disease?...reactions186repliesCoping
Being the caregiver and also the patientI was diagnosed with Myasthenia Gravis a little over a year ago. My husband has Sjogren's, Hashimoto's and Parkinson's disease and I...reactions4replies
Struggling to find a doctor to helpOn January 12, 2025, I was diagnosed with something called Eagle Syndrome. That is the easy name for it. Basically, there's a...reactions1reply
The Rare Brain Tumor That Changed My Life: The Recovery That FollowedIn June 2024, at 30 years old, I learned that I had a very large vestibular schwannoma, also known as an acoustic...reactions1comment