How Do You Cope?Does anyone have tips or things that help you cope with living with a rare disease? What do you do to manage symptom, treatment, or other challenges?...Reactions0reactionsComments41 repliesCoping
FATTY LIVER CANCERMY CANCER WAS MISSED ON MY XRAYS 1 1/2 YEARS AGO AND NOW I HAVE A DEATH SENTENCE IS THERE ANYTHING THAT COULD HELP ME Pro Long OR BEAT THIS...Reactions0reactionsComments2 repliesHealthcare Team
10 Year old with medical mysteryGood Day Everyone My son has been sick for about 4 months. He is seeing doctors and was in the hospital more than once and still he is not beter...Reactions0reactionsComments0 replies
A Rare CHANCE LifeMy story is about my son Chancely, who is a very strong & vibrant young boy! I started noticing he was sick extremely often at about 6 months old. Then...Reactions0reactionsComments2 comments