Biggest challenges you face in your current journey?Hi- I'm just curious about how people navigate this journey well. What are your biggest challanges and support needs? Where do people go to get support? What actually makes a...reactions68repliesCaregivingCopingTips & Advice
Lymphangioleiomyomatosis (LAM)I am diagnosed with Lymphangioleiomyomatosis or LAM & asthma. Looking for others that have the same thing. ...reactionsrepliesCoping
I am diagnosed with both Neuromyelitis Optica and Myasthenia Gravis. I am searching for others with the same diagnosis. I want to know the statistics regarding how many people there are in the world diagnosed with both Neuromyelitis Optica and Myasthenia. Gravis. ...reactions2repliesDiagnosisSide EffectsSymptoms
Medical Mystery Turned Into a Rare Disease WarriorJosiah J is a wild spirited two-year-old who has familial cold autoinflammatory syndrome (FCAS). When I was pregnant with Josiah I developed a lot of complications, but a mother's intuition...reactions3comments