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Check out the latest updates from our community of members living with a rare disease.

Latest Updates

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Gina Miller
Replied to status I'm a bit of a science nerd. Everything from Michio Kaku to the TV hit "Highway Through Hell" and of course I find medical science amazing. Targeted treatment for breast...
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Gina Miller
Replied to status I’m in severe pain in upper left arm, left shoulder blade, and hand, and achy in chest. ER found normal stats for heart and lungs. I believe it is nerve...
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Gina Miller
Replied to the forum topic APLAID
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Gina Miller
Replied to the forum topic Dealing w more than one
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Lynjbennett65
Shared "I'm a bit of a science nerd. Everything from Michio Kaku to the TV hit "Highway Through Hell" and of course I find medical science amazing. Targeted treatment for breast..."
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MaryTX
Shared "I’m in severe pain in upper left arm, left shoulder blade, and hand, and achy in chest. ER found normal stats for heart and lungs. I believe it is nerve..."
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Jessica Hanson
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