Active yesterdayHigh red cells and tired constantly.I have morphea and a spinal malformation, constantly sore points underneath each morphea patch, muscle spasms, tiredness and watery vision. I have a high red cell count, it's at the...Reactions0reactionsComments5 repliesSymptomsSleepTips & Advice
FeaturedBiggest challenges you face in your current journey?Hi- I'm just curious about how people navigate this journey well. What are your biggest challanges and support needs? Where do people go to get support? What actually makes a...Reactions0reactionsComments51 repliesCaregivingCopingTips & Advice
How can we support you?What information do you hope to find on our site? Is there anything in the rare community as a whole you would like to see more of?...Reactions0reactionsComments12 repliesAwarenessCopingTips & Advice
help: Persistent Sensation of Heaviness from Clothing on Chest! – ruining my life!I'm a 19-year-old who’s been dealing with a frustrating issue since I was around 8 years old, and it's really starting to wear on me, especially because I'm big on...Reactions0reactionsComments2 repliesSymptomsTips & Advice
Finding a specialist I learned I not only have osteonecrosis in both my hips, but also my left knee. All due to high doses of steroid for a long period at a time...Reactions0reactionsComments1 repliesHealthcare TeamTreatmentTips & Advice
SILENT STRUGGLES: UNDERSTANDING EATING DISORDERS"Eating disorders is an acute and serious psychological health stipulation that is noticeable by deleterious eating manners, which can seriously and crucially impact physical health and spiritual or psychological or...Reactions0reactionsComments6 repliesMental HealthTips & Advice
Anyone have any advice about CIP?(Congenital Insensitivity to Pain)I am the caregiver of a person with CIP. As he gets older, the challenges he faces have become more concerning. Does anyone have any suggestions on support groups, doctors...Reactions0reactionsComments1 repliesAwarenessTips & Advice
Patient with strange symptomsI have a patient who has severe pain in her ear that extends down to the inside of her mouth and causes burning and what seems like nerve pain. She...Reactions0reactionsComments4 repliesDiagnosisTips & AdviceSymptoms
Adrenal hormonesHi, I'm 25 y.o. male. I have doubts that I'm producing too much adrenaline. I checked all my hromones from endocrine system. Everything is fine. The problem is that in...Reactions0reactionsComments2 repliesTips & Advice
What do you guys think this is I have a couple of things going on but I don’t have a diagnosis yet but wanted to see what you all think is going on. I have drop foot...Reactions0reactionsComments1 repliesDiagnosisTips & Advice