Active 3 days agoDoes anyone here have Mast Cell Activation Syndrome?Trying to decipher if I should be avoiding My Trigger Foods altogether or if it's not The Top Couple of Ingredients I can eat it, or if it doesn't cause...reactions5repliesDiet & NutritionSymptomsTips & Advice
Active 3 days agoWhat do you guys think this is I have a couple of things going on but I don’t have a diagnosis yet but wanted to see what you all think is going on. I have drop foot...reactions2repliesDiagnosisTips & Advice
Active 3 days agoHypoglobulimia Just wondering how many others have this, mine was med induced....reactions9repliesTips & AdviceResearch & Clinical TrialsNewly Diagnosed
Adrenal hormonesHi, I'm 25 y.o. male. I have doubts that I'm producing too much adrenaline. I checked all my hromones from endocrine system. Everything is fine. The problem is that in...reactions3repliesTips & Advice
High red cells and tired constantly.I have morphea and a spinal malformation, constantly sore points underneath each morphea patch, muscle spasms, tiredness and watery vision. I have a high red cell count, it's at the...reactions20repliesSymptomsSleepTips & Advice
Having a disease without a name Greetings, I have what may be an autoinflammatory disorder vs an unlabeled rare condition that affects my barrier to inflammation. We found treatments that generally work and keep me off...reactions3repliesTips & AdviceTreatment
Life with Rare Coexistence of Systemic Lupus and Ankylosis SpondylitisHello, I just curious to find the other 8 - 10 individuals living with the Rare Coexistence of Systemic Lupus and Ankylosis Spondylitis (Axial for me ). Tbh, living with...reactionsrepliesCopingTips & AdviceDiagnosis
FeaturedBiggest challenges you face in your current journey?Hi- I'm just curious about how people navigate this journey well. What are your biggest challanges and support needs? Where do people go to get support? What actually makes a...reactions65repliesCaregivingCopingTips & Advice
Healthcare navigator specializing in rare diseasesI’m a physician-turned healthcare navigator specializing in rare diseases. Visit my website and blog at maryrodriguezmd.com...reactionsrepliesHealthcare TeamTips & AdviceNewly Diagnosed
The Weight of Rare DiseaseThis giveaway has closed but we still welcome community members to share their perspectives. Living with a rare disease comes with challenges that many people may not fully understand. Beyond...reactions99repliesTips & AdviceAwarenessCoping