Active 3 days agoRare Diagnosis ExperiencesHow long did it take you to get diagnosed with your rare disease? Did you receive any misdiagnoses?...Reactions 0 reactions Comments10 repliesNewly DiagnosedSymptomsDiagnosis
FeaturedActive 6 days agoDietary ChangesHi, I have been diagnosed with a rare genetic condition, AMACR deficiency, that so far is asymptomatic but I do have an elevated level of phytanic and pristanic acid in...Reactions 0 reactions Comments4 repliesNewly DiagnosedCopingDiet & Nutrition
Hypoglobulimia Just wondering how many others have this, mine was med induced....Reactions 0 reactions Comments9 repliesTips & AdviceResearch & Clinical TrialsNewly Diagnosed