I have been diagnosed with a rare genetic condition, AMACR deficiency, that so far is asymptomatic but I do have an elevated level of phytanic and pristanic acid in my system. I have been advised to follow a low phytanic acid diet and now have five pages of dietary requirements to follow.
Today is the first day since my diagnosis a month ago that I have just felt completely overwhelmed by it all. I guess I have had the realisation that this is my life forever, That I will constantly have to check what I am putting in my body and that is pretty exhausting.
I think it is particularly hard in the run up to Christmas which is such a food orientated time of the year (I live in the UK)
Does anyone have any tips for dealing with this?