Do you allow your child with a rare disease to go on overnight school field trips?If so, what tips have worked for you and your child? How did you prepare your child and yourself for this experience? Please share your insights or personal anecdotes below....Reactions 0 reactions Comments0 repliesCaregivingTravel
Transitioning From Pediatric to Adult CareDoes anyone have experience with transitioning from a pediatric healthcare team to and adult care team? Do you have any tips for others navigating this, either as a patient or...Reactions 0 reactions Comments3 repliesCopingCaregivingHealthcare Team
Caring for a child with a rare diseaseThis forum is for anyone caring for a child with a rare disease. Introduce yourself, ask a question, or share a story....Reactions 0 reactions Comments0 repliesCaregiving