Invisible Illness
What aspects of your rare disease are invisible to others?
I don't know
I have CVID an Celiac,and Hashimotos
, that's a lot to be dealing with! I know you shared a little bit about your CVID diagnosis. How are you managing the Celiac and Hashimotos? Do you feel like your medical team considers all three conditions when working on your treatment options?
Best, Erin, Team Member.no they ignore the celiac and Hashimotos,sometimes CVID. It really difficult in a rural area to get treatment of any of my diseases. I travel 3 hours one way for CVID treatment. Hashimotos is just treated with medication for hypothyroidism
Fatigue and immune deficiency
Pain, fatigue, confusion, sometimes unsteady on my feet.
Same!!!
