I wish others knew that...
What is one thing you wish more people knew about living with a rare disease?
That this is real.... even though outwardly I appear the same.... and then add my Scolisis and Spinal Stenosis...
Unable to mask it anymore... it even shows on my face and using 3 wheel walker is necessary/ not an option...It’s a constant struggle, physically and mentally
, this is very true! I think others can forget that a rare disease rarely takes a day off!
Best, Erin, Team Member.
That it's unpredictable!
, definitely! This would be a great fact for people to know about living with a rare disease. Thanks for joining the conversation.
Best, Erin, Team Member.
It changes day to day and even minute to minute.
, boy, isn't that the truth!
Best, Erin, Team Member.
