I wish others knew that...
What is one thing you wish more people knew about living with a rare disease?
That symptoms can change daily and one day you may be able to do something that you canāt do another day
, yes! Wouldn't it be nice if others were more aware of this fact?
Thanks for joining the conversation!
Best, Erin, Team Member.
That friendship should be a judgement free zone. No explanations should be needed. Accept people for who they are.
, yes! We all deserve some friends who are there for us, with no judgement.
Best, Erin, Team Member.
I need to have friends but they don't need to "care" for me on a daily basis - just be a friend.
, that makes total sense. Sometimes, you need friends who are just friends and don't feel like they need to be a caregiver for you. Well, caregiver is too strong a word and I hope you know what I mean.
Best, Erin, Team Member.
That expectations can not always be met, but will be addressed when they can. I force myself to get up and get out . . . at 85 years old, myesthenia gravis is the least of my problems.
, I think you are right and I wish more people understood that.
Best, Erin, Team Member.
