I wish others knew that...
What is one thing you wish more people knew about living with a rare disease?
It’s a constant struggle, physically and mentally
, this is very true! I think others can forget that a rare disease rarely takes a day off!
Best, Erin, Team Member.
That it's unpredictable!
, definitely! This would be a great fact for people to know about living with a rare disease. Thanks for joining the conversation.
Best, Erin, Team Member.
It changes day to day and even minute to minute.
, boy, isn't that the truth!
Best, Erin, Team Member.
It's unpredictable. Rare=limited information.
, yep! I think you hit the nail on the head!
Best, Erin, Team Member.
