Inclusivity and Rare Diseases: 6 Things for Friends and Family to ConsiderSocial situations can be very difficult to navigate with a rare disease or chronic illness. From navigating logistics to friends just not...2 min read
Navigating the Chronic Illness Conversation: 4 Tips for Talking With Loved OnesIt can be so hard for people outside of the rare disease community to truly understand what we go through—ongoing symptoms, fatigue,...2 min read
Community Views: We Are Rare, But Not AloneRare diseases can change your life with the everyday challenges it brings. It is hard enough to live with the constant stress...2 min read
What Is ANCA-Associated Vasculitis?ANCA-associated vasculitis is a group of rare autoimmune diseases. In these conditions, the immune system attacks the body's own small blood vessels...2 min read
Diagnosing ANCA-Associated VasculitisGetting a diagnosis of ANCA-associated vasculitis can take time. The early symptoms often look like other, more common illnesses, so doctors usually...2 min read
Treatment for ANCA-Associated VasculitisSeveral medicines are used to treat ANCA-associated vasculitis. Treatment usually has 2 goals: first, to bring the disease under control, and then...3 min read
