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Tired of Doctors Calling Me Unusual image

Tired of Doctors Calling Me Unusual

I've learned a lot about the medical profession over the years and here in the west, they are trained to look at numbers on tests for everything. If your numbers...

Habberdasher

By Habberdasher

3 min read

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Amy’s story: Let’s play a little game

● Lift up your right arm, and now lift up your left. Lower them again. ● Tip your head up. Look up as high as you can. Move your eyes...

AmyMillardChronicMom

By AmyMillardChronicMom

2 min read

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Welcome to RareDisease.net Stories!

At RareDisease.net, we believe that we are stronger together than we are alone. Living with or caring for someone with a rare disease can be a challenge, but the more...

Editorial Team

By Editorial Team

1 min read

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