When Stubborness Pays Off

I knew from childhood that there was something different in my health from other kids. It seems as if I was born just before various issues were diagnosed and studied. As a child, I was always getting sick with respiratory infections, just one after another. Late fall and winter were the worst: I would spend months in bed.

Pushing through

These weren't my only problems, but the respiratory illnesses were the worst. I wish I just had a dollar for every doctor's appointment I have had in life. I loved learning & I got my bachelor's degree & then grad school because I wanted to teach in post-secondary education. My health was never great, but I learned that although I might be ill, no one ever seemed to catch anything from me so I pushed on, no matter how I felt. However, my body just really could not be pushed anymore after my second daughter's birth.

Answers, at last!

Finally, an immunologist opened a practice & with much testing, I was finally diagnosed with gamma globulemia, a condition in which my body did not produce enough antibodies to keep me healthy. Since that diagnosis, things have changed. I got a MRSA pneumonia in 2016. After I battled through that, I was told that the new term is CVID, Common Variable Immune Deficiency. I am on weekly IV infusions of gamma globulin & have done really well.

My new normal

I try to limit my exposure to crowds of people. I can't visit people in hospitals or nursing homes & I can't go to gyms anymore. However, life is good. I did have to give up my career, but I have a wonderful family. Unfortunately, my oldest daughter inherited my genetic abnormality for CVID, but she was able to start gamma globulin treatment much earlier than I was. I am glad that my stubbornness made me continue to seek the answers to my illnesses.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The RareDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Have you taken our Rare Disease In America Survey yet?