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What fills your cups on hard days?

Living with a rare disease or caring for someone who has one can be challenging. We want to know how you keep your own cup full while navigating difficult symptoms, multiple tests, and/or the exhaustion of fighting to be believed.

  1. To keep my cup full, I cherish small joys like morning tea, nature walks and reading. Leaning on supportive friends and family, practicing mindfulness and celebrating every little victory help me stay grounded and hopeful.

    1. Thank you for sharing what helps you stay grounded and positive. I particularly appreciate being reminded by your share to celebrate all victories, no matter how small or large. I have been struggling lately with overwhelm in helping my dog through a lingering illness at the same time that I am dealing with my own health challenges from ongoing pain. I am choosing now to now celebrate that his vet finally determined what bateria he is fighting via a PCR test, and that last night he began the specific antibiotic to help him fight it.

      Your share was very timely for me to read... showed me, again, how very powerful it is for us to share along these lines,
      Thank you.
      Gina (Team Member)

  2. I am a caregiver which fills my cup up. some days I am my own caregiver rest up for myself

    1. I take long, warm baths

      1. I have found that spending time with my plants and flowers helps me stay grounded and focused. Also, when I take my daughter to appointments, we do our best to have a little bit of fun and visit her favorite places to eat and shop.

        1. , both of those sound like lovely ways to fill your cup and inject some joy into otherwise hectic days. I love gardening as well - I am slowly piecing together a scent garden. -Do you have gardening goals? Warmly, Donna (team member)

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