What fills your cups on hard days?
Living with a rare disease or caring for someone who has one can be challenging. We want to know how you keep your own cup full while navigating difficult symptoms, multiple tests, and/or the exhaustion of fighting to be believed.
To keep my cup full, I spend as much time with my precious grandbabies as I possibly can. Even if it’s only a few minutes on FaceTime. It’s the best medicine for my soul. Also grabbing a little time talking with my boys makes this momma’s heart so happy that I almost forget about my health challenges for just a little while. I do some journaling as well in the hopes of eventually writing a book about my journey with MG. Putting it all on paper is very helpful in this process.
To keep my cup full, I cherish small joys like morning tea, nature walks and reading. Leaning on supportive friends and family, practicing mindfulness and celebrating every little victory help me stay grounded and hopeful.
Thank you for sharing what helps you stay grounded and positive. I particularly appreciate being reminded by your share to celebrate all victories, no matter how small or large. I have been struggling lately with overwhelm in helping my dog through a lingering illness at the same time that I am dealing with my own health challenges from ongoing pain. I am choosing now to now celebrate that his vet finally determined what bateria he is fighting via a PCR test, and that last night he began the specific antibiotic to help him fight it. Your share was very timely for me to read... showed me, again, how very powerful it is for us to share along these lines,
Thank you.
Gina (Team Member)
I am a caregiver which fills my cup up. some days I am my own caregiver rest up for myself
I take long, warm baths
