Indolent Systemic Mastocytosis: What It Is and What It Means for YouIndolent systemic mastocytosis, usually shortened to ISM, is a rare immune condition affecting an estimated 1 in 10,000 to 20,000 people worldwide...3 min read
Symptoms and Triggers of Indolent Systemic MastocytosisIndolent systemic mastocytosis (ISM) symptoms can be hard to pin down. They show up in different parts of the body, they can...4 min read
How I Start Difficult Conversations About My Rare DiseaseWhen living with a rare disease, setting boundaries around physical limitations is important. As a person with narcolepsy, I've had to learn...2 min read
Finding Friendship in the Rare Disease CommunityWhen I was first diagnosed with a rare disease, I struggled to find a sense of community. Like many others, I had...3 min read
