Indolent Systemic Mastocytosis: What It Is and What It Means for YouIndolent systemic mastocytosis, usually shortened to ISM, is a rare immune condition affecting an estimated 1 in 10,000 to 20,000 people worldwide...3 min read
Symptoms and Triggers of Indolent Systemic MastocytosisIndolent systemic mastocytosis (ISM) symptoms can be hard to pin down. They show up in different parts of the body, they can...4 min read
How I Start Difficult Conversations About My Rare DiseaseWhen living with a rare disease, setting boundaries around physical limitations is important. As a person with narcolepsy, I've had to learn...2 min read
How Is Indolent Systemic Mastocytosis Diagnosed?Getting to an indolent systemic mastocytosis (ISM) diagnosis often takes a long time. The non-specific nature of ISM symptoms might mean that...4 min read
Finding Friendship in the Rare Disease CommunityWhen I was first diagnosed with a rare disease, I struggled to find a sense of community. Like many others, I had...3 min read
6 Things I Wish I Knew When I Was Diagnosed with Systemic MastocytosisI’ve always joked that a new diagnosis should come with a handbook for how to navigate your body and your life. While...4 min read
Newly Diagnosed With Indolent Systemic Mastocytosis: What to ExpectBeing newly diagnosed with indolent systemic mastocytosis (ISM) can bring relief and worry at the same time. There’s finally a name for...3 min read
Explaining Rare Disease: How to Talk About Indolent Systemic MastocytosisNavigating the social dynamics of any chronic illness can be a challenge. So it probably doesn’t come as a surprise that trying...3 min read
