how have y'all been coping with fear, insomnia, due to being in remission?

Hi, !

I am so sorry I didn't see your comment before now! I am so glad your lung cancer is in remission, but I think I can understand dealing with fear and insomnia. I mean, when anyone hears the word "cancer", it can feel like having a ticking time bomb in your body. And every time you need to get tests done to see if you are still in remission can feel like being stuck in limbo. I don't think your feelings are unusual in any way. The C word tends to have that effect. It comes in like a tornado and even after its gone, it can leave quite a mess in its wake. If you're interested, we do have a sister site dedicated specifically to lung cancer -- https://lungcancer.net/. You might find people there that can relate to how you are feeling in a way that those of us that haven't battled cancer just can't. I thought you might find this article on the topic of life after remission useful -- https://lungcancer.net/living/no-evidence-of-disease. (Also, we do have a site dedicated to MG as well -- https://myasthenia-gravis.com/. )I know I am not offering much helpful advice here, but I want to say that I think your feelings and experiences are valid and normal and I am so glad you are open to sharing them in places like this. I know everyone thinks achieving remission is like crossing the finish line, but, there's a whole life on the other side of the finish line and remission is only one goal accomplished in the journey of a cancer diagnosis.

You're not alone in this. Congratulations on your remission. That IS a big accomplishment! And I do hope you and your doctors are able to get a handle on the MG symptoms you are dealing with so you can start feeling better and maybe getting some good sleep!

Best, Erin, Team Member.