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Read conversations, start a discussion, and connect with others about rare diseases.

Active 5 days ago

Workplace Experiences

Has your rare disease impacted you in the workplace? What kind of experiences (positive or negative) have you had with disclosing to managers or coworkers?...

What are some of the biggest accessibility challenges you face in your daily life due to your rare disease?

Accessibility is a crucial part of living with a rare disease, and your experiences can be varied yet also relatable. Consider sharing your thoughts or experiences about accessibility in the...

What could workplaces do to foster a more disability-inclusive culture?

What ideas do you have for employers to create a more supportive work environment for people with visible or invisible disabilities?...

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