Active 4 days agoWhat are some of the biggest accessibility challenges you face in your daily life due to your rare disease?Accessibility is a crucial part of living with a rare disease, and your experiences can be varied yet also relatable. Consider sharing your thoughts or experiences about accessibility in the...reactionsrepliesAwarenessWork & EmploymentCoping
Workplace ExperiencesHas your rare disease impacted you in the workplace? What kind of experiences (positive or negative) have you had with disclosing to managers or coworkers?...reactions2repliesWork & Employment
What could workplaces do to foster a more disability-inclusive culture?What ideas do you have for employers to create a more supportive work environment for people with visible or invisible disabilities?...reactionsrepliesWork & Employment