Numbness in fingertips, sensations in feet and head all depends on what I eat.
Started with numbness in finger tips, then to my feet feeling weird in the morning when I got up, now I have constant sensations in my feet, I get sores if I eat the wrong things. I struggle with thrush, I would get discomfort and heating up in groin area. Hair loss. Burning in thighs and scalp. I worked out that everything came back to what I was eating, the worst would be sugar. Now I have to avoid as much sugar as poss, can't eat yeast, diary, starch.....pretty much on eggs, lean meats and non starchy veg, some nuts. No matter what I do my symptoms just gradually get worse and the doctors can't seem to do anything for me. I am certain what triggered this all in the first place was my diet, stress eating, too much chocolate and cakes. It's has been going on for almost 3 years now. I can't eat out or order take out, I'm so restricted with what I can eat that it's depressing.
Thanks for you response, I'm in the UK so it's all through the NHS. Just been pushed around different departments waisting my time basically. I've been seen be neuro, gastroenterology and now with a dietician. Gastroenterology was like one phone call and that referred my straight to a dietician. The dietician is lost with me. The local GP seems to think it's a matter of trying to keep my symptoms under control instead of finding out what's really going on, they just don't know what to do with me. They have done all sorts of tests like checking for coeliac and such. All my tests come back normal. The weird thing in all this is my dad is starting to show early signs of it too. I stick to a strict Candida free diet (like keto but more strict) and when I have a slip up I certainly know about it. I want to put some weight back on but it's impossible on the diet I'm on. Just feel like it's only going to keep getting worse unless someone can help me.
Hi
, That's a lot of reactions to a lot of possible foods. I feel for you on how hard it is to know if it's just food or if it might be something deeper... what speciality docs have you seen to get a full evaluation from?
In my own healthcare journey, I have had to request certain testing on my own, and luckily no that I am on Medicare with a Medicare supplement plan I have been able to see some specialists without pre-authorization. Because of that, I was an allergist that did upper arm testing and found dust mite allergy plus a bunch of trees and common yeast, and also got a sleep study done that found minor apnea and hyperventilation and a need for a CPAP.
Still, even before getting onto medicare and the supplement plan, I needed to push primary care docs often to get certain testing done.Don't give up in searching for possible additional treatable diagnoses causing some of your symptoms.
Hugs,
Gina Miller,
RareDisease.net team Member
