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Read conversations, start a discussion, and connect with others about rare diseases.

Sheehans

Does anyone have this besides me?...

Symptoms of Eye Vision Damage?

Eye vision damage can present with a variety of symptoms, depending on the underlying cause and severity. Common signs include blurred or...

Recognizing the Symptoms of Eye Conditions

Understanding the symptoms of various eye conditions can help in early detection and treatment, preserving vision and eye health. Common symptoms such...

Looking for rare disease advocates for a podcast.

I have a podcast called Rare Connection. I am trying to connect rare disease patients with others with the same or similar...

Looking for board members for a nonprofit

I have a podcast called rare connection, I am trying to turn it into a nonprofit. With my podcast I am connecting...

Can anolder person get into a clinical trial

SILENT STRUGGLES: UNDERSTANDING EATING DISORDERS"

Eating disorders is an acute and serious psychological health stipulation that is noticeable by deleterious eating manners, which can seriously and crucially...

Amyotrophic Dermatomyositis

Anyone taking injection methotrexate for this?...

From Parkinson’s to Progressive Supranuclear Palsy

10/2020 diagnosed with one disease, 12/2023 P.S.P. I was told that this new disease diagnosis was so much worse. My fate was...

DBS and previous blood clots

I have a complicated history of blood clots that put my scheduled dbs on hold for over 1.5 years. I'm now eligible...

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