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UNDIAGNOSED RELAPSING NEUROMUSCULAR / NEUROLOGICAL DISORDER – SEEKING ADDITIONAL OPINIONS

Patient • Female • Age 45 • United Kingdom Overview The patient developed a slowly progressive neurological illness approximately three years ago...

Hypogammaglobulinemia

This disease has caused me to be allergic to many medications and some can kill me. Looking for oxidative help so that...

Do you consider yourself to have an invisible illness?

What aspects of your rare disease are invisible to others? Share in the comments below....

Have you ever seen your rare disease represented in the media?

How did it make you feel? Did you feel it was an accurate depiction? Tell us more about what you would like...

Undiagnosed Long Term Disease HELP!

Hi all Brief rundown, I am a 23-yr old male and have been chronically ill now for over 24 months, bedridden, extreme...

Experience with normal pressure juvenile glaucoma?

I have low/normal pressure juvenile onset open angle glaucoma that was ~11 years late diagnosed. It’s medication resistant and my next option...

Anyone have this? It’s really distressing.

I’m wondering if anyone else has experienced something similar, especially at night or around sleep. I’ve been having episodes involving a strong...

Possible Cervical Myelopathy

7 months ago I suffered an acute injury causing a herniation at L5-S1 giving me S1 Nerve compression. The neurologists and orthopedics...

Feeling alone

I have Microscopic polyangiitis, a form of vasculitis that closes up my small blood vessels. Mostly in my kidneys, lungs and intestines...

15 years no closer to answer's

Hi everyone, I'm just winging it and reaching out to the Internet today to ask if anyone knows anyone or any conditions...

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