Red rash in my mounthI have red "rash" or something in her mounth for more then 2 months. What do you think this is?...Reactions 0 reactions Comments1 replies
Hypoglobulimia Just wondering how many others have this, mine was med induced....Reactions 0 reactions Comments9 repliesNewly DiagnosedResearch & Clinical TrialsTips & Advice
Invisible IllnessWhat aspects of your rare disease are invisible to others?...Reactions 0 reactions Comments8 repliesCoping
High red cells and tired constantly.I have morphea and a spinal malformation, constantly sore points underneath each morphea patch, muscle spasms, tiredness and watery vision. I have a high red cell count, it's at the...Reactions 0 reactions Comments2 repliesSleepSymptomsTips & Advice
Addison's Disease Most people have never heard of Addison's Disease or know what adrenal glands are and what they do. I have a little information about it, but not much. I was...Reactions 0 reactions Comments2 replies
Traveling With a Rare DiseaseTell us about your travel experiences? How do you prepare for a long or short trip? Do you have any tips to share with the community?...Reactions 0 reactions Comments1 repliesTravel
Dealing w more than oneHi, I'm happy to have run across this email, community forum. I currently suffer with HS & also Hydrocephalus. These are two rare diseases. How did I get both... Guess...Reactions 0 reactions Comments5 repliesAwarenessCopingDepression
Rare Disease in ChildrenWere you diagnosed in childhood? How did having a rare disease shape you? If you are a caregiver, share about your little warrior!...Reactions 0 reactions Comments0 replies
West Nile VirusLong term walking difficulty. Walk very slowly with a cane....Reactions 0 reactions Comments0 repliesCopingExerciseTreatment
Guys, I'm so rare, it seems I'm the only one here with autoimmune cholangitisPlease tell me I'm not the only one with this diagnosis, here...Reactions 0 reactions Comments1 replies
