What is the most annoying unsolicited advice you've heard?What annoying or unhelpful suggestions are you most tired of receiving (unsolicited!) from other people?...reactions46repliesCoping
Unknown Health conditions that is so discormfortingHi, everyone I woke up one morning to notice that I have a burning sensation on one of my legs. I thought...reactions8repliesDepressionSymptomsTreatment
Undiagnosed still but something is wrong Hi, I know there’s something going on, but doctors dismiss me, don’t listen, or tell me they don’t know what’s wrong but...reactions8repliesCopingDepressionDiagnosis
My Journey with Myasthenia Gravis and Lung CancerOn an ordinary day, on a routine doctor appointment, I found out I had myasthenia gravis and lung cancer in one brief...reactions3replies
I wish others knew that...What is one thing you wish more people knew about living with a rare disease?...reactions173repliesCoping
High red cells and tired constantly.I have morphea and a spinal malformation, constantly sore points underneath each morphea patch, muscle spasms, tiredness and watery vision. I have...reactions24repliesSymptomsSleepTips & Advice
UNDIAGNOSED RELAPSING NEUROMUSCULAR / NEUROLOGICAL DISORDER – SEEKING ADDITIONAL OPINIONSPatient • Female • Age 45 • United Kingdom Overview The patient developed a slowly progressive neurological illness approximately three years ago...reactions1replySymptoms
HypogammaglobulinemiaThis disease has caused me to be allergic to many medications and some can kill me. Looking for oxidative help so that...reactions1replyWork & EmploymentHealthcare TeamResearch & Clinical Trials