Undiagnosed insane symptoms
1st time here. I desperately need help as to why I go numb and loss bodily function and become extremely dizzy if I don't have constant heat on me when I sit or lay down (not moving) I have spinal problems but never was able to get MRI so no specific diagnosis and now have no medical.
I have problems from head to toe including pain and numbness. Some numbness is constant. At times without warning can lose most of feeling in either left or right foot.
Some dizziness is constant.
This has been ongoing and worsening for over 20 yrs.
In 2008 my doctor gave in to insurance company and stop expensive cream medicine that helped reduce pain and inflammation. They didn't want to keep providing for a chronic condition. I was so disgusted I haven't asked for any medication since and have been on my own.
My main help has been heat therapy. Direct heat on me. I had a very bad flu in 2013 that kept worsening and lasted all winter. This was the final straw that I never recovered from. I became very cold and numb without excessive amounts of hear directed at me when not in motion.
As summer heatwave hit I naturally reduced the heat. This caused a severe reaction that lasted 6 days of dizziness, nauseous, vomiting, unable to eat, extreme pain, loss of mental ability to think.
I'm between a hard place and a rock. We are now beginning 100s heatwave. My body can not handle any air conditioning (it thinks I am trying to freeze myself) AND it still wants heat. Yesterday I turned off heat during day and within an hour the severe dizziness was starting back up. Took hours of heat to reduce dizziness. I can't sit for long without severe spasms in neck and spine. I feel like I'm living in a science fiction nightmare.
Sorry for the long explanation.
That sounds incredibly overwhelming, and I’m really sorry you’re going through this without proper medical support. It’s completely unfair that insurance decisions can block access to the care you need—especially when you've already been dealing with this for so long.
I’ve dealt with insurance denying legitimate care too (on a much smaller scale), and one thing that helped me was using a free tool called Counterforce Health. It’s designed to help people appeal denied claims or figure out how to fight for coverage. It might help you navigate the system and push for care again—especially if you’re trying to get an MRI or revisit coverage options.
Also, you’re not alone in this—even though it absolutely feels like it. If you haven’t already, maybe try connecting with chronic illness or rare condition communities (like r/ChronicIllness or r/Undiagnosed on Reddit). Sometimes just having people believe you is the first kind of help that actually helps.
, Thank you for sharing the tool, it's something that could be helpful to many community members! - Warmly, Donna (Team Member)
Hi
,
It sounds like you are truly living in a nightmarish reality...I am so very sorry that you are suffering, and without healthcare. It sounds as if you live in the US, based on your share about 'the heatwave situation.' If so, and you haven't yet checked on whether or not you qualify for Medicaid or reduced-cost coverage through the government (*Obamacare), I hope you will check into it at: https://www.healthcare.gov/
Also, please google Medicaid along with the name of your state to see if you qualify for free healthcare.
Unfortunately, although you are searching for help with a diagnosis, we moderators here on the forum aren't medical professionals...just other patients trying to help fellow patients in their healthcare journeys...We are known as 'Patient Leaders.' Still, even if we were medical providers, we would not be allowed to try to diagnosis over the internet.
MAYBE other patients on the forums here will recognize your symptoms & can try to direct you, but even then it seems imperative...necessary... that you find a medical provider quickly, to make sure you aren't in immediate danger, and to direct you properly to what experts to try to see for getting you on the road to a diagnosis, or at least to learn of what treatments might be available to help stabilize you.I wish could be of further help, but I think this is all I have on my end...
Please be careful over the rest of the weekend, and get to an ER if need be. As fatigued as you sound, please make sure to make as many calls as you can on Monday morning to try to get health insurance coverage. Oh...another thought...I would also think you might be able to call to a local hospital also, to see if they offer compassionate care. I know there is a hospital system here in the southern California area that does that for those in need.Hugs,
Gina Miller,
Team Memberthank you.
Do you know of any over the counter testing kits that are reliable that have matched with doctor's results? Such as urine or saliva tests in pharmacy stores? I found a couple on Amazon that were inexpensive but don't know if they are worth it since my budget is tight and mixed reviews as to their accuracy. I'm drinking pedelyite and emerg-C, plus protein drinks.I don't and I cannot offer medical advice, not even as a fellow patient as I have never had your symptoms.
Glad you're trying to stay hydrated, tho. Please get yourself to an urgent care or emergency room if need be.
Take care,
Gina
Team Member
One additional information
Arms and legs will go Completely numb if heat isn't directly on me at night.
Hi, I just wrote a reply to your prior post...
Hope you can find out what is causing these symptoms and can get relief very soon.
Hugs again,
Gina
