Hi, ! It looks like can possiby relate to your diagnosis. I hope you two are able to chat about LAM. Also, I don't know if you are interested, but there is a foundation dedicated to LAM -- https://www.thelamfoundation.org/. They have a lot of resources and it may be a good place to start if you are looking for extra support and information about LAM. And please know you are more than welcome to share about LAM here anytime. After all, more information about rare diseases like LAM is helpful for everyone!
I hope you are receiving treatment at this time and that your lung health can be stabilized as much as possible.
Best, Erin, Team Member.