Undiagnosed with neurological symptoms and multiple misdiagnoses

Hi folks!

I'm currently seeing a neurologist, who is giving me multiple tests to see what rare disease I may have.

About a year ago, I started randomly slurring my speech for about 5 minutes at a time. I went to my GP at the time, who told me it was stress related and to try to relax. So, I did attempt to de-stress.

Then, one day, my left leg hurt so much I could not get out of bed. I somehow forced myself to go to Urgent Care. Once there, I was told nothing was wrong with me and given a cane to help me walk.

These two symptoms kept getting progressively worse and would come and go.

In January 2024, I was sent to the ER because one of my legs was dragging behind me and my speech was slurred. I was treated as a stroke patient. The doctors there ran tests (MRI, EEG, etc.), but found nothing. I was diagnosed with functional neurological disorder (FND), given a walker and went home. I had to use a walker because I now had loss of balance whenever I tried to walk.

More symptoms are coming: Sometimes, I have back pain. Sometimes, I have muscle spasms, muscle pain in a particular limb, and muscle weakness. This comes along with slurred speech.

My GP has told me that I have Bell's Palsy, but that doesn't explain why I suddenly stopped being able to walk one day. It's been 7 months since I started using a walker. I've been referred to a neurologist, who has sent me to get an MRI, EMG, and NCV test.

I still have to do daily chores, even though my muscles feel weak and I get easily tired now. I take frequent breaks and naps to rest. I have fallen twice already despite using a walker.

Prior to January, I was attending university full-time and working part-time. I could cook, clean, walk, run and swim without any issues. I eat healthy meals and drink a lot of water since I have diabetes type 2. Thus, I was already seeing a dietician for my diet.

I've already been diagnosed with one rare disease, Alport's Syndrome. So, I wouldn't be surprised if I got diagnosed with another rare disease. Any ideas what this could be? Thank you.