Jake Marrazzo

Jake Marrazzo is a writer, author, and patient advocate living with Duchenne muscular dystrophy. He was diagnosed at 8-years-old, and was in a wheelchair by age 12. Since then, he has been living with the loss of arm, heart, and lung strength that comes with this disease.

Currently, he is studying film and new media studies at Wheaton College Massachusetts. Since childhood, he’s had a major passion for writing, whether it be screenplays, his 2 published children’s books, or posting on social media about his lived experiences. He feels it’s important to spread awareness and be open about life with a rare disease, in hopes of helping others remember that they are not alone. His goal is to continue sharing how he sees the world through his fictional and non-fictional stories alike.

Despite having Duchenne, Jake specifies that he doesn’t suffer from this disease, but lives through it. He has appeared on local news interviews, keynotes, talks with pharmaceutical companies, and more. You can learn more about him and what he’s up to at www.jakemarrazzo.com.

Click here to read all of Jake's articles on RareDisease.net.