a woman with her small son leaving the house in pajamas. Her big bag is packed with all the necessary items.

Webinar: Emergency Preparedness Workshop

Living with a rare disease can mean that emergency room and primary care doctors are unfamiliar with your condition. This can make visits to the emergency room, urgent care center, or out-of-town clinic extra stressful.

While we may not be able to control the situations that put us in the emergency room or the doctors who are on call, we can take steps to prepare ourselves – and those who may accompany us – for navigating emergency care when living with a rare disease.

Webinar: emergency preparedness workshop

In this webinar, Dr. Jamie Wright, a neurobiology resident and rare disease patient, walks through steps to prepare for an emergency with a rare disease. This workshop includes information on medical wearables, record storage, emergency room visits, traveling, and more.

You can watch the replay video below:

About Dr. Jamie Wright

Jamie Wright, MD, PhD, is originally from Texas and is currently a neurology resident at the University of Washington in Seattle, Washington. She earned a bachelor of science in molecular biology with a minor in neurobiology at the University of Texas at Dallas. She then completed a combined MD/PhD at the University of Texas at Houston McGovern Medical School, where she did her PhD in biomedical research studying rare genes involved in cerebrovascular disease.

Dr. Wright was inspired to pursue a career in both neurology and research by her own experiences growing up with a chronic neurological condition, congenital hydrocephalus. She has been a volunteer for the Hydrocephalus Association since 2012, when she started a support group in Houston for people and families affected by hydrocephalus, and is now leading a community network in Seattle.

Outside of medicine, she enjoys spending time with family and friends, crocheting, and hanging out with her cat, Abigail Bagel. She also shares her experiences with hydrocephalus and other chronic medical conditions, including rare diseases, on Instagram and Twitter as @shuntedmdphd. She hopes to use her experience as both a doctor and a patient to improve the lives and care of those also affected by chronic illness.

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