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Living With Pompe Disease

Questions to Ask Your Doctor About Pompe Disease image

Questions to Ask Your Doctor About Pompe Disease

Whether it is you or a loved one who is diagnosed with Pompe disease, you likely have many questions about the condition. Even if you have been living with Pompe...

How Is Pompe Disease Treated? image

How Is Pompe Disease Treated?

Pompe disease is a rare, inherited disease in which the body cannot process glycogen, a type of sugar. People with Pompe disease do not make enough of a chemical in...

Nutrition and Exercise With Pompe Disease image

Nutrition and Exercise With Pompe Disease

Right now, there is no cure for Pompe disease. The main treatment is enzyme replacement therapy (ERT). ERT drugs help replace the protein (enzyme) that is low or missing in...

Community Poll

Which type of Pompe disease were you diagnosed with?

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Pompe Disease and Genetics

Pompe disease is a genetic condition. People with Pompe disease have changes in specific genes that impact how they break down sugar. These gene changes are called gene, or genetic,...


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