Benefits of Taking an Advocacy Break

Since becoming a rare disease mom, I have been relentlessly dedicated and solidly committed. However, more so now than ever, I have found a crucial need to pause and refresh my mind.

Stepping back from advocacy was difficult, but it has had profound benefits.

Preventing burnout and recharging energy

Advocacy is an emotionally demanding field of work, both for caregivers and patients. Constant exposure to challenges, discrimination, and roadblocks can lead to burnout, which eventually drains the passion and energy needed to create a permanent change. Taking a break allows you to step away, replenish yourself, your family, and your needs, and return with new ideas.

During my time off, I focused on things that had been put aside, such as housework, setting up new therapies and respite care, and spending quality time together.

Gaining perspective and renewed purpose

Distance from anything often provides clearness. By stepping back, you allow yourself to gain a broader perspective. During this time, you can assess strategies, reevaluate your goals, and realign your efforts with the original purpose of your work.

During my time off, I made lists of the pros and cons of each of the projects I was involved in to determine if they were the best fit for me. I focused on what brought my goals to life, not anyone else's.

Fostering long-term sustainability

Maintainable advocacy isn't about continuous work; it's about balance and strength. We need regular breaks to sustain energy in the long run. Advocates who prioritize self-care and take periodic breaks are better equipped to withstand challenges, remain resilient, and stay committed to their cause.

During my time off, I realized that as much as I preach self-care, I am not good at it. I don't take nearly enough breaks, which is what caused me to burn out in the first place. This is something that I need to work on in the coming year.

Advocacy is a lot, but it is not everything

Expanding your personal experience beyond advocacy allows you to explore more areas of interest. During this time, you can invest in a new hobby, spend time with those close to you, or even catch up on the sleep you have lost during your journey. Doing things that fill your cup is just as important as advocacy.

During my time off, I slept more than I have in a long time, spent time with my husband and children, and just enjoyed relaxing — something that I didn't know could exist in my life anymore.

Taking a break does not make you less committed

Advocacy is not an easy job. It is important to know when you need to pause, refresh, and maintain. By learning to do this, you can proactively take care of yourself, gain clarity, and be a more successful advocate.

I have learned that taking breaks doesn't show that you aren't committed; instead, it shows that you are determined.

What keeps you from taking an advocacy break? When do you know that it's time to take a break? What are the signs? Share with us in the comments below.