Jamie Activity | RareDisease.net

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Jamie

Member

Replied to the forum topic Biggest challenges you face in your current journey?
Commented on the post Finding Your Advocacy Voice: Embracing a Safe Community
Replied to the forum topic Biggest challenges you face in your current journey?
Shared "Spent the day being very productive, learning, and coming up with ways to spread awareness while honoring my late brother, and bringing hope to my newly diagnosed Child. "
Replied to status Celebrated the first World Periodic Paralysis Day, now on to advancing my toolbox to enhance awareness through writing and education. Excited to start a few projects

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