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Lynjbennett65

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"2 things as a POTSIE with MCAS, bilateral peripheral neuropathy from Celiac disease. 1 on May 12 I broke my ankle. IT HURT A LOT and I almost passed out. On May 29 I had Open Reduction Internal Fracture repair of 3 bones. (and I have 3 broken metatarsals...) I have 1 plate and 10 screws holding the bones in my ankle in place. I went through 2 splints and now I'm wearing an Airsoft boot. TWO: I SPOKE UP FOR MYSELF! As someone with neurodiversity I had to say. Nope I can't do that. I can't look at the wound on my leg from the surgery. Not yet, I'm not ready. I told them I would be bringing a long aids that would help shield me from having to see it and I'm positive I looked silly but I didn't FEEL silly. I've got hyperphantasia... mental imagery that is highly tuned and very cinematic. I knew if I saw the ankle I wouldn't be able to forget it. I needed to wait until I was emotionally ready. Now I simply stop people from describing things that are just to much. I'm getting better at describing myself and my particular needs.
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"2 things as a POTSIE with MCAS, bilateral peripheral neuropathy from Celiac disease. 1 on May 12 I broke my ankle. IT HURT A LOT and I almost passed out. On May 29 I had Open Reduction Internal Fracture repair of 3 bones. (and I have 3 broken metatarsals...) I have 1 plate and 10 screws holding the bones in my ankle in place. I went through 2 splints and now I'm wearing an Airsoft boot. TWO: I SPOKE UP FOR MYSELF! As someone with neurodiversity I had to say. Nope I can't do that. I can't look at the wound on my leg from the surgery. Not yet, I'm not ready. I told them I would be bringing a long aids that would help shield me from having to see it and I'm positive I looked silly but I didn't FEEL silly. I've got hyperphantasia... mental imagery that is highly tuned and very cinematic. I knew if I saw the ankle I wouldn't be able to forget it. I needed to wait until I was emotionally ready. Now I simply stop people from describing things that are just to much. I'm getting better at describing myself and my particular needs.
"

2replies

About Lynjbennett65

  • Member Since 2024