What Are Rare Kidney Diseases?...In the United States, a kidney disease is considered rare if it affects fewer than 200,000 people. There are more than 150...reactions5comments
Pompe Disease: What You Need to Know...Pompe disease is a rare genetic condition that affects the muscles that connect to your bones and heart. It is also called...reactionscomments
Holidays and Rare Diseases...Holidays with a rare disease can be challenging, particularly regarding energy, diet, and disability accommodations. Balancing energy and stress levels during holiday...reactions1comment
Questions to Ask Your Doctor About Living With MAC...If you have been diagnosed with MAC lung disease, you might have many questions that need answers. A lot of new information...reactionscomments
How to Start Your Own Advocacy Group...Advocacy groups are dedicated to a specific cause. They are made up of motivated members who come up with plans to make...reactions1comment
What Is the Difference Between Still’s Disease, Juvenile Idiopathic Arthritis, and Rheumatoid Arthritis?...Adult-onset Still’s disease (AOSD), systemic juvenile idiopathic arthritis (SJIA), and rheumatoid arthritis (RA) are all forms of arthritis that share many similar...reactionscomments
What If I Am Resistant to Antibiotics for MAC?...As many as 80 percent of typical MAC lung disease cases can be cured with treatment. However, in some cases, MAC germs...reactionscomments
Amy’s story: Let’s play a little game...● Lift up your right arm, and now lift up your left. Lower them again. ● Tip your head up. Look up...reactions5comments
My Mental Health Discoveries...Content Note: This article describes suicide. If you or a loved one are struggling, consider reading our suicide prevention article. Through my...reactionscomments
What Is Caregiver Burnout?...Living with a chronic condition can be exhausting. Caring for others also can be draining. People with chronic disease and their healthcare...reactions2comments
What to Expect After a MAC Diagnosis...Being diagnosed with MAC lung disease is overwhelming for many people. The good news is that most infections with Mycobacterium avium complex...reactionscomments
Exercising When You Have a Lung Condition...Shortness of breath and fatigue are common symptoms of lung conditions. These issues can make it hard to want to exercise. They...reactionscomments
Coping with Grief During the Holiday Season...Editor’s Note: This article was originally shared by our sister site, H-I-V-.net, and was written by Khafre Kujichagulia Abif. I can remember...reactions4comments
5 Practical Tips to Thrive After a Kidney Transplant...Not long after receiving my kidney transplant, I remember sitting on my couch, majorly uncomfortable and in pain after making the slightest...reactionscomments
My Rare Disease Journey With Hemophilia...Greetings! My name is Shawn, and I'm happy to be a contributing writer for RareDisease.net. Maybe you are also living with a...reactionscomments
What Is the Social Health Network?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
Nutrition for Lung Health...What you eat can play a big role in your lung health. Maintaining a healthy weight, partly through diet choices, can be...reactionscomments
Shawn Decker...Shawn Decker is an internationally recognized health educator who has spoken to over 100,000 college students across the United States. After graduating...
How to Navigate Online Doctor Ratings...Editor’s Note: This article was originally written by Elizabeth Medeiros and shared by our partner site Psoriatic-Arthritis.com. The internet has changed how...reactions2comments
Community Members Share Their MAC Lung Disease Experiences...Navigating a MAC lung disease diagnosis can be challenging. There can be a lot of uncertainty and many questions that arise. It...reactionscomments