Ella Balasa

Rare Disease Health Leader Ella Balasa Ella Balasa is a patient advocate, consultant, and a person living with cystic fibrosis. She was diagnosed at 18 months old and has experienced countless hospitalizations since being a child. She has committed her time to empowering patients and advancing research and healthcare strategies through her connections with researchers, pharmaceutical companies, and patient organizations. She is an advocate for the development of novel therapies for the treatment of antibiotic-resistant infections and speaks publicly about the value of the patient perspective. She also has a passion for writing, distilling clinical information for patient communities, and sharing about the hardships yet triumph that comes with living with a chronic illness. Through opportunities working with healthcare organizations and sharing her health journey, she aims to affect the healthcare landscape by raising awareness of cystic fibrosis, empowering self-advocacy in other patients, and delivering valuable patient insights to organizations. More of her work and experiences can be found at www.ellabalasa.com.

Click here to read all of Ella's articles on RareDisease.net.

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