Ella Balasa

Through my many healthcare experiences due to having cystic fibrosis, I have experienced the power that lies in self-advocating for my health in the clinic setting. My passion is to empower...

As someone living with advanced lung disease due to a rare disease called cystic fibrosis, I am all too familiar with the symptoms and burdens that this challenge brings to...

Rare disease advocates are patients that have a story to tell and are willing to share these experiences with the world. Our goal is to share the story of living...