4 Realities of Living With Advanced Symptoms of a Rare Disease

As someone living with advanced lung disease due to a rare disease called cystic fibrosis, I am all too familiar with the symptoms and burdens that this challenge brings to my day-to-day life.

My experiences of living with advanced symptoms of a rare disease

In this video, I share some of the difficult realities of living with advancing disease including the mental, emotional, and physical burdens.

I also some of the ways we can move through our challenges and value the small accomplishments and fulfillment that we can find in each day.

Can you relate to any of the advanced symptom realities Ella talks about in her video? Tell us about your experiences! Share your story, or leave a comment below.