4 Realities of Living With Advanced Symptoms of a Rare Disease

As someone living with advanced lung disease due to a rare disease called cystic fibrosis, I am all too familiar with the symptoms and burdens that this challenge brings to my day-to-day life.

My experiences of living with advanced symptoms of a rare disease

In this video, I share some of the difficult realities of living with advancing disease including the mental, emotional, and physical burdens.

I also some of the ways we can move through our challenges and value the small accomplishments and fulfillment that we can find in each day.


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