Welcome to RareDisease.net Stories!

Last updated: July 2022

At RareDisease.net, we believe that we are stronger together than we are alone. Living with or caring for someone with a rare disease can be a challenge, but the more we share and support one another, the better off we will be. Whether it’s your own story of how you manage your rare disease symptoms or complications, to tips on daily living, we want to hear from you!

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So please submit your own personal story about rare disease, and check back often to read about the stories others in the community share. We hope these stories become a source of inspiration and support for our community.

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