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Long time to diagnosis

I had symptoms with Bechets when
I was 10 yrs old hospitalized with terrible mouth sores and pain. From abused home. No support never
Complained again . Continuing symptoms terrible menstrual cramps ongoing sores and joint pain.
Difficult pregnancy told I had terminal lung cancer after birth of son. Did not. Very I’ll for nine months following birth but soldering on. No dx. At 35 yrs old dx with Bechets by
Elderly rheumatologist. 40 yrs endometriosis after emergency surgery. 64 yrs tbm and relapsing polychondritis systemic.

  1. that's an awful lot you've been having to endure with little to no answers and sounds like with little treatment as well. How are you doing now and what's helped you make it through such difficult times?

    1. , suffering that long with no relief or answers is inconceivable. Have you had any relief now that you have a diagnosis? - Warmly, Donna (Team Member)

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